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Care Area: Adult Palliative Care

International Association for Hospice and Palliative Care

IAHPC is a global membership organization that empowers individuals, civil society organizations, and governments, so that every person with palliative care needs has access to appropriate treatment and care. IAHPC’s website includes resources for health and social care professionals and researchers.

Marie Curie Palliative Care Knowledge Zone

The Marie Curie Palliative Care Knowledge Zone provides information that can help professioanls with providing the best possible care for people living with a terminal illness, and the people important to them. Information includes conditions specific information, care at the end of life, symptom management, recognising emergencies, planning and communication, caring for underserved or disadvantaged communities, and guidance and safeguarding

Hospice UK

Hospice UK in the national charity representing charities in the UK. Hospice UK’s Innovation Hub includes support, development opportunities, resources, and guidance and access to their networks and communities for professionals working within palliative and end of life care

Guidance for Bereavement Support provided bySpecialist Palliative Care Social Workers

Hospice & Palliative Care Social Workers Group guidance on bereavement support needs of patients and their families as part of a continuum of care from illness into bereavement. The document reviews the current understandings of the grief and loss experience in the context of research, guidance and policy. This informs the evidence-based guidance for social workers in their support of patients and their families within specialist palliative care services.

Compassionate Communities Position Paper

Position Paper developed by Queen’s University Belfast.
The paper puts forward nine recommendations. It emphasises the need for a mandate for fostering a compassionate communities approach at local government level. This would recognise that caregiving, dying, death and grieving should not be the role responsibility of health and social care.

Compassion and Pride for the LGBTQIA+ Community in Death

Ember is an end-of-life guide that was developed and driven by a group of volunteers from the LGBTQIA+ community and allies. It aims to inform and empower LGBTQIA+ people to start thinking about Advance or Future Care Planning for end of life and support Health and Social Care professionals caring for the community at end of life.