Evidence for Children’s Palliative Care in Ireland
This report aims to provide a better understanding of the needs of children with life-limiting conditions and improve the planning and delivery of children’s palliative care services across Ireland.
Database of Palliative Care, End of Life Care and Bereavement Education
Database which includespalliative care, end of life and bereavement education and training opportunities on offer across the island of Irelan. It is designed to support health and social care professionals; students and members of the public find relevant education and training in one place.
Toolkit for palliative care needs in children
Together for Short Lives has published updated categories of children’s palliative care, giving professionals a shared framework to identify which children may benefit from a palliative care approach.
Integrated Care Pathway for Children with Complex Physical Health Care Needs
This pathway guides community services in meeting the needs of families, children and young people, aged up to 18 years, who have complex physical healthcare needs. This is defined as: Children (and young people) with complex physical healthcare needs are those who require a range of additional support services beyond the type and amount required by children generally and those usually provided to children with impairments and long-term illnesses.
Northern Ireland Antenatal Pathway
The Northern Ireland Regional Paediatric Palliative Care Network (RPPCN) have developed a resource to support families and professionals where a diagnosis of a potentially life limiting, or life-threatening condition has been made at antenatal stage. The resource will help inform parental decisions and promote effective communication between professionals to ensure the most effective supports are put in place.
Providing high quality palliative care for our children: a strategy for children’s palliative and end-of-life care 2016-26
The Northern Ireland Department of Health’s 10-year strategy for palliative and end of life care for children and young people
HSE Integrated discharge guidance for children and young people with Life-limiting conditions transitioning to a community care setting for end-of-life care
HSE Integrated discharge guidance for children and young people with Life-limiting conditions transitioning to a community care setting for end-of-life care
HSE Clinical governance and operational arrangements for supporting a model of care for children with life limiting conditions towards the end of life in the community in Ireland
This document concludes the work of an Expert Advisory Group established by the Chief Clinical Officer of the HSE to set out an operational and governance framework for palliative care for children with life limiting conditions in the community. It sets out the current approach to care, limitations within the service and the proposed model for both operational and clinical governance.
Helping healthcare professionals who help grieving families
The GSHP online learning library provides healthcare professionals with zero-cost foundational education on core concepts of grief, grief-sensitive communication with patients, supporters, and colleagues, and personal wellness in high-exposure environments.
Palliative Care Week Reports
Annual Reports detailing the impact of AIIHPC’s annual Palliative Care Week campaign.