HSE ‘Children’s Palliative Care in the Community’. Webinar, 5 March 2026

HSE 'Children's Palliative Care in the Community'

Webinar, 5 March 2026

Introduction:

The All Ireland Institute of Hospice and Palliative Care (AIIHPC) hosted the HSE webinar on ‘Children’s Palliative Care in the Community’. This webinar highlights recent developments in children’s palliative care which have resulted from the implementation of the HSE 2020 report ‘Clinical governance and operational arrangements for supporting a model of care for children with life-limiting conditions towards the end of life in the community in Ireland’.

This report was commissioned by the HSE Chief Clinical Officer and developed by an expert advisory group led by Professor Bee Wee from the NHS. It provided clear actionable steps across workforce, education and governance workstreams which have strengthened and enhanced the delivery of children’s palliative care in the community.

This one-hour webinar provides an update on the implementation of the Professor Bee Wee report recommendations and considers the positive impact these developments have had on children and their families as well as the teams which provide the care.

Audience:

Healthcare staff working in paediatrics, palliative care, community settings, service development, educators and policymakers with an interest in children’s palliative care.

Speakers:

Dr Colm Henry, Chief Clinical Officer, HSE
Dr Feargal Twomey, Clinical Lead, National Clinical Programme for Palliative Care, HSE/RCPI
Dr Mary Devins, Consultant in Paediatric Palliative Medicine, Children’s Health Ireland, Crumlin
Jean Fitzsimons, Clinical Nurse Coordinator for Children with Life-Limiting Conditions, Children’s Health Ireland

Chair:

Martina O’Reilly, Programme Manager, Policy Lead, National Office for Palliative Care, HSE

Host:

All Ireland Institute of Hospice and Palliative Care

Recording:

Watch the full webinar recording below :

Resources:

Bee Wee Report: ‘Clinical governance and operational arrangements for supporting a model of care for children with life-limiting conditions towards the end of life in the community in Ireland’ can be accessed here.
‘Integrated discharge guidance for children and young people with life-limiting conditions transitioning to a community care setting for end-of-life care’ can be accessed here.
Dr Twomey’s presentation slides ‘Progress on Implementation’ can be accessed by clicking on this link.
Dr Devin’s presentation slides ‘Integrated Discharge and Guidance for Children and Young People with Life-Limiting Illness Transitioning to a Community Setting for End-Of-Life Care’ can be accessed by clicking on this link.
Jean Fitzsimons presentation slides ‘Frontline Insights: The CNC Experience of the Children’s End of Life Discharge Checklist’ can be accessed by clicking on this link.
Evaluation of the webinar is available here.