Scottish Partnership for Palliative Care
The Scottish Partnership for Palliative Care brings together health and social care professionals from hospitals, social care services, primary care, hospices and other charities, to find ways of improving people’s experiences of declining health, death, dying and bereavement. Their website includes a wide range of resources including ones for health and social care professionals
APPM Clinical Guidelines (2023) – Seizures, agitation and GI dystonia
The APPM clinical guidelines seek to address symptoms, topic by topic, offering robust evidence-based, peer-reviewd clinical guidance to clinicians working with children and their families to support symptom management, palliatve and end of life care. The APPM members prioritised the symptoms in need of roubust guidance: Seizures, Agitation and GI Dystonia (initally called ‘gut failure’)
Association for Paediatric Palliative MedicineFormulary 2024 (6th edition)
The APPM’s entire formulary has been reviewed and updated incorporating recent published literature, specialist advice and feedback from formulary users. Many of the monographs have been extensively rewritten and references have been brought up to date. The formulary has also been completely reformatted, including greater use of tables and with the aim of improving clarity and navigability.
Hospice UK
Hospice UK in the national charity representing charities in the UK. Hospice UK’s Innovation Hub includes support, development opportunities, resources, and guidance and access to their networks and communities for professionals working within palliative and end of life care
Together for Short Lives Series of Care Pathways
The Together for Short Lives Series of Care Pathways focus on putting children and families at the centre of the process of planning care and support, with the aim of delivering integrated services in response to individual needs. The Together for Short Lives pathways aim to provide broad frameworks for developing more detailed and bespoke local pathways.
Together for Short Lives
Together for Short Lives are the leading UK-wide charity for children living with serious illness, their families and the people who support them. The website includes a large amount of resources for health and social care professionals working with children and young people
HPAL: Expert palliative care information with links to local services to support clinicians and healthcare workers and the public
HPAL is a co-designed, adaptable digital resource providing quick, reliable palliative and end-of-life care information for clinicians, patients and carers, alongside locally tailored service information to support care in the community.
CCLG: The Children & Young People’s Cancer Association
The CCLG website contains information for medical, healthcare and other professionals working with or supporting a child with cancer
Bringing care closer to home: Improving palliative care in remote, rural and island communities.
Hospice UK report that shines a light on people’s experiences of death, dying and bereavement in rural communities, shares learning and innovative approaches to delivering care for both adults and children, and makes recommendations for services, local systems and policy makers to improve care and support in rural communities across the UK
NES Talking About Bereavement Podcast
Public Services Delivery Scotland, Bereavement Education Programme Team