APPM Clinical Guidelines (2023) – Seizures, agitation and GI dystonia
The APPM clinical guidelines seek to address symptoms, topic by topic, offering robust evidence-based, peer-reviewd clinical guidance to clinicians working with children and their families to support symptom management, palliatve and end of life care. The APPM members prioritised the symptoms in need of roubust guidance: Seizures, Agitation and GI Dystonia (initally called ‘gut failure’)
Association for Paediatric Palliative MedicineFormulary 2024 (6th edition)
The APPM’s entire formulary has been reviewed and updated incorporating recent published literature, specialist advice and feedback from formulary users. Many of the monographs have been extensively rewritten and references have been brought up to date. The formulary has also been completely reformatted, including greater use of tables and with the aim of improving clarity and navigability.
ICPCN’s Education and Membership Hub
ICPCN is the only global organisation working to improve access to palliative care for the 21 million children worldwide who need it. Through our Education and Membership Hub you can become a member of ICPCN and engage with some of our resources such as e-learning, webinars and bespoke training.
International Children’s Palliative Care Network
ICPCN is the global umbrella organisation for children’s palliative care. ICPCN is a network of individuals and organisations globally working to improve access to palliative care for the 21 million children worldwide who need it. ICPCN aim to achieve our mission by raising awareness of children’s palliative care, advocating for the global development of children’s palliative care, expanding the evidence-base and sharing expertise, skills and knowledge. ICPCN’s website includes resources for professionals
International Association for Hospice and Palliative Care
IAHPC is a global membership organization that empowers individuals, civil society organizations, and governments, so that every person with palliative care needs has access to appropriate treatment and care. IAHPC’s website includes resources for health and social care professionals and researchers.
Marie Curie Palliative Care Knowledge Zone
The Marie Curie Palliative Care Knowledge Zone provides information that can help professioanls with providing the best possible care for people living with a terminal illness, and the people important to them. Information includes conditions specific information, care at the end of life, symptom management, recognising emergencies, planning and communication, caring for underserved or disadvantaged communities, and guidance and safeguarding
Hospice UK
Hospice UK in the national charity representing charities in the UK. Hospice UK’s Innovation Hub includes support, development opportunities, resources, and guidance and access to their networks and communities for professionals working within palliative and end of life care
Together for Short Lives Series of Care Pathways
The Together for Short Lives Series of Care Pathways focus on putting children and families at the centre of the process of planning care and support, with the aim of delivering integrated services in response to individual needs. The Together for Short Lives pathways aim to provide broad frameworks for developing more detailed and bespoke local pathways.
Together for Short Lives
Together for Short Lives are the leading UK-wide charity for children living with serious illness, their families and the people who support them. The website includes a large amount of resources for health and social care professionals working with children and young people
Compassion in Action: Transforming the Lives of Children and Families—a free two-partonline learning programme from ICPCN.
Inspired by the WHO guide Integrating Palliative
Care and Symptom Relief into Paediatrics, these interactive courses combine practical learning, reflection and real-world scenarios to help improve children’s palliative care worldwide. Registration is now open through the ICPCN´s Education and Membership Hub: